Loss of driving is just one of the many significant transitions you may face as the person with dementia’s disease progresses. You may feel like you are on an emotional roller coaster. To cope, it’s important to recognize that it’s normal to experience a range of emotions such as:

• Loss, sadness, grief: regarding the person with dementia’s inability to continue to drive safely. In the bigger picture, it’s a reminder that they will eventually lose their independence. Stopping driving may represent the loss of your dreams for the future.
• Fear, anxiety: regarding how to cope with the emotions of the person with dementia and your own emotions around the transition to no longer driving. In addition, fear about the possibility of the person with dementia getting into an accident and hurting themselves or others. There is the fear of the accident itself as well as the fear of being blamed for not being able to prevent it from happening.
• Frustration, anger, guilt: regarding how the transition from driver to a passenger is going, especially if the person with dementia has responded to the idea of no longer driving with denial, intense sadness, withdrawal, anger, or blame.
• Discouraged, powerless: regarding the person with dementia’s insistence on continuing to drive.
• Overwhelmed: regarding added responsibilities, of having to do all/most of the driving or, if you do not drive, having to make all the driving arrangements.

Once you have identified what you are feeling—for example, sadness, anxiety or anger—then to cope, don’t try to avoid the emotion by simply continuing on as if you aren’t having these feelings. Instead, allow yourself to feel the emotion.. For example, to heal feelings of loss, be kind to yourself by allowing yourself to grieve. Signs that you may be experiencing grief include:

• Physical signs of grief include shortness of breath, dry mouth, tightness in your chest, difficulty sleeping or lack of energy.

• Behavioural and emotional changes that may be indicators of grief include crying, restlessness, misplacing items, confusion, disorientation, or worrying.

Far too often family/friend carers takes it upon themselves to meet all the transportation needs of the person with dementia. But they should not have to do it alone.  Identify people in your life who may be able to provide support. For example:

• Connect with family members.
• Reach out to friends who have been there for you in good times and bad.
• Consider whether any of your neighbours, co-workers, and/or faith leaders may be able to provide valuable support.
• Talk to your doctor or other healthcare professionals.
• Communicate with other people who are taking care of a person with dementia through in-person support groups or online forums.
• Use this circle of support worksheet (click here) to help build a support network. It was produced by The Hartford.
• Contact your local Alzheimer Society (click here) organization. They can provide support and resources. 
  
  

Here's what some family members have to say:

• Talking to someone about my side of the situation when I had to become the only driver, and thus the only person to do all the errands, grocery shopping, business, etc. It's a huge load for any one person.
• See if you can have other family members or friends take your family member with dementia out for coffee, lunch or to sporting events or maybe a movie from time to time. Just to give yourself a break.

If you are finding it difficult to handle how the person with dementia is reacting to the idea of no longer driving, empathy can help. Recognizing their emotions can increase understanding of their situation. Driving fulfills different needs for different people. As a result, giving up driving can have a serious impact on the person with dementia’s identity and self-worth. For example, driving can be connected to numerous aspects of identity and lifestyle such as:

• Sense of freedom, and independence
• Work and livelihood
• Friendships and other forms of connection like attending faith services
• Roles like taking care of a spouse, children, or aging parents
• Enjoyment like a drive in the countryside

Not only is it common for people with dementia to experience a range of emotions around giving up driving, sometimes their emotions can be so strongly negative that it prevents them from agreeing to stop driving. In other cases, the person with dementia may recognize that their driving abilities are declining and they are at ease with the decision to give it up. Sometimes they may even feel relieved because they find driving makes them anxious.

By understanding their feelings you will be in a better position to help them stop driving, as well as cope with their emotions. Try to relate to what the person with dementia is going through by recognizing that typical emotions include:

• Loss, sadness, grief: regarding whatever driving represents to the person with dementia—for many, driving means independence and self-sufficiency. Giving up driving may also represent yet another blow in terms of their dementia diagnosis and that they will gradually lose many abilities. This may include a sense of loss regarding pride of ownership as they lose a valued possession of a car.
• Fear, anxiety: regarding what their life will be like when they can no longer drive. For example, they may worry about how they will get around for not only practical reasons but for socializing and enjoying life.
• Guilt: regarding how giving up driving may inconvenience others. This may compound guilt they are already feeling regarding the help they are getting in relation to their dementia diagnosis overall.
• Frustration, anger: regarding a sense of what they perceive as no control or no say about stopping driving. They may think that they aren’t being treated fairly, which may be intensified due to the nature of dementia and inaccurate memory and insight.
• Agitation, irritation: regarding not being able to express feelings as the dementia progresses or not being able to fully understand what’s going on, left with just an overall, generalized feeling that something is wrong.

• Embarrassment: regarding having to admit to others that they are no longer able to drive safely.
• Denial: regarding they are no longer able to drive safely. This may be because they can’t remember unsafe driving incidents or lack insight into their loss of driving skills. This can lead to stubbornness and a refusal to stop driving.
  
  

Here's what various emotions may sound like:

• Denial: “This isn’t happening to me…. I can drive just as well as I ever could.” “I am as smart as I always was.”
• Anger: "Why is this happening to me? This is not fair. How am I supposed to get our groceries?” “These tests they did (to test my driving skills) were silly and childish” “What do these doctors know about me anyway?”
• Bargaining: “I’ll drive more carefully if you let me keep my license..”  “I won’t drive on the highway, only to the church or grocery store.”
• Depression: “My life is over.”
• Acceptance: “If you help me with the bus schedule, I’ll give it a try.”
  
  

Source: Alzheimer Society of Ottawa and Renfrew County

No matter what emotions the person with dementia is experiencing, an effective way to help them cope is by acknowledging and validating what they are feeling. For example:

• Help them identify what they are feeling (as needed) and encourage them to talk about what they are going through.
• Listen with empathy and show that you understand their feelings by providing reassurance with comforting words.
• Encourage them to face painful feelings like sadness and loss rather than avoid them. This often helps people process their feelings leading to an improved state of mind.
• Avoid saying anything that might come across like you are denying or discounting their feelings.
• Encourage them to talk to other supportive people in their life, like family members and friends as well as their doctor, other health and mental health care professionals and faith leaders.
• Suggest they contact their local Alzheimer Society for support and resources. 

• Try these tips (click here) for starting the conversation about driving risk and making it an ongoing discussion that is positive.  

• Work with the person with dementia on this circle of support worksheet (click here) to help identify who else they can turn to or support. It was produced by The Hartford.
  
  

Here's what some family members have to say:

• Talking about it is good to dispel feelings of frustration and loss. It's a big thing to give up driving after a long time. It signifies a big change and can be very difficult.
• Remain patient. You may have to explain several times the reason the family member (with dementia) can't drive.
• Allow them to be back seat drivers. Be patient when they tell you how to drive. Let them be part of the experience.
• Assure your family member (with dementia) that not driving isn't who they are and that driving them places is an opportunity to spend time together. Do not make them feel that it is a chore. Assure them often of your unconditional love.

To help offset the loss of identity and purpose that the person with dementia may be experiencing, encourage them to try new activities. For example, attending adult day centres or volunteering with the Alzheimer Society can provide opportunities to help others and restore their feelings of self-worth.  

Here's what some family members have to say:

• She gave her car to my niece, which made her feel helpful and was a way for her to give up driving with dignity.
• Let them know they are doing the right thing for the community at large and for them as well to be safe and happy.